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Advocacy

Endometriosis and How I Suffered in Silence

Atlanta, GA • December 3, 2020

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Endometriosis and How I Suffered in Silence

Thank you Edelweiss Study for sponsoring this post. Be sure to visit the Edelweiss Endometriosis Study landing page to see if you or a loved one qualifies to participate. This post may also contain affiliate links, earning me a small commission if you click, at no additional cost to you.

If you have or know anyone that has endometriosis you may know that it is extremely painful. Endometriosis is a debilitating condition that causes uterine tissue to grow and attach outside of the uterus. It can also cause fertility issues in many women. I have 2 kids so I never thought of endometriosis as a possible cause for my pain. However, endometriosis can develop at any age so you are not always born with it. It affects women of all ages and demographics. I gave birth to my first child in 2007 and my second child in 2010. 

 Shortly after my second child, I began experiencing excruciating pain during periods. I went to doctor after doctor and most would say they found nothing. I knew there was something more happening. Not only was I suffering before and during my periods, but ovulation was also painful. Midway through my cycle, ovulation pain was so unbearable I could barely walk. I would constantly miss work or social events and I felt like such a burden. Sometimes I would just suffer in silence so I didn’t come off like I was constantly complaining.

"When all you know is pain you don’t know that that is not normal. It is not a woman’s lot to suffer, even if we’ve been raised that way."

- Susan Sarandon
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eventually i got a diagnosis

In 2017 I decided to have a Laparoscopy to treat ovarian cysts and sure enough, they found severe Endometriosis. During the surgery, the doctor removed what he could, but told me there is a chance it will return. Within a year the pain came back worse than ever. This time, however, every doctor suggested that I go back on birth control. Sometimes, doctors would answer my frustrations with painkillers and hormones. So little is known about endometriosis and its causes that many women like myself continue suffering for years with no answers.

what can you do about it?

First, I am here to tell you that you are NOT alone and I know exactly what you are going through. You may have opted for surgery like I did or you may take hormones or birth control. However other options are on the horizon and there is hope. The Edelweiss Study is happening now and it’s a clinical trial — please head to the link to see if you’re a candidate to participate and sign up! They are hoping to provide women like you and me with newer and more effective treatment options that can help us lead a more normal and active life, instead of living in pain. Visit the link below to see if you qualify for the Edelweiss Study now!

Erica




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